Why is research involving people with Alzheimer's disease difficult?

The article reflects the reasons for the scarcity of patient-inclusive projects in Alzheimer's disease psychosocial research. Among the prejudices concerning research methods the authors identify and examine: 1. the expectation to obtain rich data while involving as little means as possible, 2. the belief that investigating experiences of AD patients poses specific challenges to the researcher and 3. the conviction that the scientist's role is abused by such challenges. The attitude towards involving people with AD in research is also shaped by fear and stigma connected with the disease. The need to apply a metaclinical perspective is suggested.

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eISSN:	2083-828X
ISSN:	1509-2046

The journal is supported by the State Treasury as part of the Development of Scientific Journals (RCN) program
Project no. RCN/SN/0189/2021/1 implemented from 2022 to 2024
Total value of the project: PLN 200 000
Amount funded by the MEiN: PLN 80 000
Aims of the project: Publication in Open Access mode on the Internet of 8 consecutive issues of the journal Archives of Psychiatry and Psychotherapy (years 2022-2024). Modernization and redesign of the journal’s website. Financing of the Editorial System. Copy editing and proofreading of journal issues. Counteracting scientific misinformation. Submission of electronic versions of the journal to the National Digital Library Polona and the Digital Library of Scientific Publications Academica.